Monday, November 2, 2015

Patience and well intentioned advice

It's been a horrendous month, to say the least. Out of respect for Rose, I won't share too much detail but let's just say her running has become a nearly daily event. Even more sad is other behaviors we had seen disappear and/or improve years ago are back and stronger than ever.

In that time, we have had to engage folks everywhere for help: police (more times than I'd like to admit), crisis workers, hospitals, social workers, to name a few.

These folks get called in during our most stressed moments as a family. The moments where Rose isn't able to cooperate easily, and my patience is exhausted and my heart continues to break as none of the positive reinforcement that once pulled her out of this work any more. It truly seems she's pulling away emotionally.

Since everyone is trying so hard to help, in their own special ways, I had once vowed to never post any of the less helpful advice we have received. However, maybe if people read this, they might learn?

Lastly, what prompted this post was how a police officer did an about face, which I will conclude the post with because, no one intends to be harmful when at our house at 9 pm. They do want to help.

So here it is, things I hate hearing from people who clearly lack a true experience living with an adopted child:

1) "Let me explain to you how reactive attachment disorder is affecting your daughter."

Why this bugs me: We went through extensive training on this topic. No need for more education when we are literally chasing our daughter around the woods at 8:30 pm, please, just send help.

And frankly, unless you've lived it, you can't preach it. And living it doesn't include a few hour sessions in a therapeutic setting.

2) "Well, that's just normal teen behavior." 

Why: um, yes, however, the whole mental crisis of this teen puts her in tremendous risk. You should know that. More over, while you say that, I seriously doubt the intensity of what we are living with is comparable.

3) "she reminds me of my child, all you need to do is.."

Why: a home grown child is not in any way comparable to Rose. Period. 

4) "Even families with homegrown kids have issues like this."

Why: well, this is certainly true. I'm not minimizing those families' plights. I appreciate knowing others have navigated mental health issues with their kids. 

But at the same time, this doesn't help. Maybe I feel less isolated. However, I'm not sure how that pearl of wisdom will help me in my crisis moment.   Unless those families can magically appear.

5) "She's 14, she can sit down at this park alone all she wants."

Why: well I ignored my intuition and took this advice, giving her 20 minute of space at her park to cool down. She ran away for a serious length of time. 

Again, she isn't your typical 14-year-old. She's vulnerable, and that great advice could have resulted in her death.

Plus you just planted the idea in her head that it was acceptable for her to run from the house instead of going to her room/art room to cool down.

6) "Just hold her and physically bring her home."

Why: Clearly, this advice comes from someone with no understanding of PTSD. This is just stupid and will escalate an already deregulated kiddo into a worse state, causing her to possibly act out physically in ways she'll feel sadly about later.

7) "did you do x, y, z"

Why: some people have a great knack of putting destructive ideas into Rose's head. Won't go into all of them. I will say rose hasn't done most of them but regularly claims to for attention.

Ok, so vent over. Here is what I would love to hear from you if you're called to my house during a crisis. 

Plain and simple, I just want you to say you're sorry this is happening, that you can only offer verbal support, but you're happy to do so. Then ask us what we need. We know our daughter better than anyone, and we know what the best next step is. Trust us. Be our ally and firm but kind with her.  Thank you. 

And if you do say any of the  pieces of advice above and my husband or I snap at you, just know it's because we are in fight mode as we are trying to save our daughter's life. We aren't at our best, but I promise, if you met us in normal situations, you'd love us.

So I'll conclude by saying a police officer who responded to our calls for help last night spent a lot of time yelling at my husband for many of the reasons above. Again, my husband tried to rationally respond and explain, but the officer wasn't understanding our situation. 

He finally calmed down, and he did what we asked, transporting rose back home. After conversing with her on that short ride, he walked out of the car and apologized. It was the only good thing of the night. So thanks for extending that humanity, sir. We appreciate it.




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